Tuesday, December 17, 2013

Five years is represented in this picture.  Over 1200 signatures, pledges of 7th grade students pledging not to use the R word, and to stop others when they do. The future is changing...... In five more years will this social experiment be different?http://youtu.be/oc_K9c24R5o thank you Turner! I read every pledge, and will hang on to them! Change our future one person at a time.......

Saturday, December 14, 2013

Post Script

  Most people are good down to earth well meaning folks filled only with good intentions. It's not everyday you will run into someone who has every intention of ruining your day, and can't see the good in anyone or anything. These naysayers aren't misunderstood, they make their point known and it can not be mistaken.
 It is the kind folk who say something they think is nice, or don't know what to say so they try really hard to be sweet. For example a social classic "God won't give you more than you can handle", or " He knew what He was doing when He gave you a special child", and last but not least "I could never do what you do".                                                                                                                                 Why you ask do I bite my lip and draw blood when I hear these well meaning statements? They all stem from a place of feeling sorry. Yes indeed there was a time I felt sorry for myself for having a differently abled child. For sure it is still filled with daily challenges most people don't think twice about. Making simple plans is made harder, and extra steps are added to everyday routines. It is what it is. Don't be sad for me and my family. We got this!

P.S. You would too.............................................


Friday, May 10, 2013

He's got the beat

When I was pregnant with Alex I played classical music to him with headphones on my belly every single day. When he was in the NICU he either heard me reading stories to him or more classical music.

I am certain that when Alex is an adult he is going to contribute to us all in some form of music. Music is his first love, and he has got the beat!

Just after 8 seconds on this video you will hear Alex, lets call it be bopping to the beat. Because he is non verbal I have not heard him use his voice with obvious intention, not including when he is crying or laughing etc........Lately though he has been "be bopping" or when "talking" with his dynavox he will squeal from start to finish that his talker is talking for him.

This boy has skillz! I am in love.


Monday, April 15, 2013

4 Points lost


We made a family trip to the Saint Louis Children's Museum over spring break. Everyone else we knew seemed to be ocean side, so it felt good on our egos to say we did something fun with the kids. 4 good parenting points................

When out in public I see others notice Alex. He can be very loud as he "sings" and makes his voice known. He is easily spotted in a crowd with his large swinging movements, and rocking. Our family is so used to it. The brothers don't even notice, or at least don't show that they notice. When out in public it is not Alex I notice, but the strangers who notice Alex.

Some people say I can have a negative outlook. I like to say it is a real perspective, not jaded by fairy tales and rainbows. Yeah, I often times assume the worst. It feels safe to me, and many times I am right to do so.
So when I noticed a little boy in an orange shirt who could not stop looking at Alex, I assumed he was a little jerk, and I looked around for his mother to teach him some manners. No parenting points for her on her museum trip!
We entertained the kids by building a tower, and letting Alex knock it down. He SQUEALS in excitement, moans in anticipation, and sometimes a tear or two when overwhelmed. Then I noticed the boy. He was drawn to Alex, he appreciated Alex and his joy. He wasn't thinking mean thoughts, nope, I was.................. 4 points taken away............

Kids aren't naturally mean or judgmental they learn all that from us, our assumptions, and our ignorance.

 Lesson learned!

New chapter

I just registered this baby for kindergarten

Time to write a new chapter..........................