In 2007 our third son was born, we were expecting a healthy, normal birth, he immediately went into respiratory distress, and was flown to a NICU in St.Louis, Mo for possible heart lung bypass(ECMO). While in the NICU he was diagnosed with a very rare syndrome (Rubinstein Taybi Syndrome), this is the story of our journey, our new kind of normal.

Friday, February 24, 2012

Make the pledge!

r-word.org

Posted by Jessica mommy to Alex/ RTS at 9:07 AM

1 comments:

Jackie said...

:-) Just an old follower. Sure would like to hear an update on you and the boys. Hope you all are fine!

April 17, 2012 6:09 PM

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