4 years later
That was what she said......The wonderful Dr. Cox. Lets keep his g-tube idle. Not in use............NOT ACTIVE. We are just 3 days to the 4 year mark that we were re-admitted to the hospital for aspiration pneumonia which began the ball rolling on getting the g-tube placed. Now we have been given the green light, err I feel ready to turn on the green light and not use this miracle called a mic-key button. LOVE the button! That little piece of plastic kept Alex out of the hospital more than I can count on my hand. Kept him growing better than expected, and gave me a peace no doctor could give me.
Alex eats, and drinks enough that I and his doctors don't feel the need of relying on this plastic to keep him going.
Next goal to get the boy to pick his own cup up and choose to drink........For now, Ill gladly hold it for him, and the button will be idle.................