In 2007 our third son was born, we were expecting a healthy, normal birth, he immediately went into respiratory distress, and was flown to a NICU in St.Louis, Mo for possible heart lung bypass(ECMO). While in the NICU he was diagnosed with a very rare syndrome (Rubinstein Taybi Syndrome), this is the story of our journey, our new kind of normal.
4 comments:
It all looks like fun! Glad you're having a great summer!
That looks like a great camping trip!
Awesome pictures!!! I LOVE the one of Alex sitting in the chair talking on his phone with his foot all propped up on the table. That couldn't be any cuter!
Wow, that second one is gorgeous!
Nikki
www.madebynikki.blogspot.com
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