In 2007 our third son was born, we were expecting a healthy, normal birth, he immediately went into respiratory distress, and was flown to a NICU in St.Louis, Mo for possible heart lung bypass(ECMO). While in the NICU he was diagnosed with a very rare syndrome (Rubinstein Taybi Syndrome), this is the story of our journey, our new kind of normal.
2 comments:
I'm glad it's warm enough there to play in the water...we'll still freezing here in SoCal. Alex strikes me as such a big boy in that last picture...the expression is just joy.
Wow- Look at your boys! So big! How do you do everything you do? I have one less kid, I'm not going to school and I can barely keep up. I'm in awwwwww of you. Miss you my friend.
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