In 2007 our third son was born, we were expecting a healthy, normal birth, he immediately went into respiratory distress, and was flown to a NICU in St.Louis, Mo for possible heart lung bypass(ECMO). While in the NICU he was diagnosed with a very rare syndrome (Rubinstein Taybi Syndrome), this is the story of our journey, our new kind of normal.

Tuesday, June 21, 2011

Joy is













Posted by Jessica mommy to Alex/ RTS at 3:22 PM

1 comments:

Jacqui said...

Joy is seeing these pics - thanks for brightening up my day and reminding me what is important in life - hugs, Jacqui

June 23, 2011 8:25 AM

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