Saturday, June 25, 2011

Spontaneous vacation

Sometimes being spontaneous turns out to be the most fun! We had to get away! So we drove to Saint Louis spent the night, and then spent the day at the zoo and the science center.........

It so much fun!

Saturday, June 18, 2011

and the ugly...............

Alex was not a happy camper at school last week. Thursday was the worst. In tears when I went to pick him up, and cried all the way home. At home I took his shoes off, and he acted as if I was pulling off his feet. His shoes were hurting him. Too small? Too tight? A toe in the wrong place? I'm not sure, but the boy just needed to tell someone that his shoes were hurting him. His teacher tried changing environment, holding, hugging. Nothing worked. I try and wonder what it would be like if I had a pain, but I could not speak. People in my face hugging me, offering all the wrong things. So unbelievable frustrating, and I don't think that word quite covers it. This is the ugly side of non verbal. An email has been sent and a hurting picture will soon be in his book of communication. It is just simply unfair.

Monday, June 13, 2011

Hangin around..............

It is all we have been doing....................

But, not really. Joel has been going to Tae Kwon Do.

The big boys also just finished up with Camp Invention, which they loved!!!!

Between Noah's baseball games we have been able to go to the park.

Bella and I have been getting up in the early hours and doing the Couch to 5K program. I just finished week 4, but I think I will repeat it, as I found it very harsh.

I have been sitting in this very chair doing page after page out of my workbook for my CNA class.

Alex likes to sit by me, Ill miss that when he is off to school very soon.

Monday through Thursday for 4.5 hours I will be sitting here. Absorbing lots of information.

Oh look, I put this picture in twice. It is a good one though. He is so handsome.

So there isn't much time to just hang out these days, but when we can, we make the best of it.

Thursday, June 9, 2011

Still goin strong!

Alex continues to communicate.
I have a whole list of words that need to be added to his repertoire, and should be when school starts this month.

I continue to be thrilled each time he uses his "voice"

While on the topic of communicating. Alex is doing great! However, as much as his brothers say out loud small thoughts of randomness, thoughts of emotion, and ask questions. I know very well that Alex is not yet able to communicate fully. He has constant thoughts that I don't have the pleasure of knowing. More importantly he doesn't get the pleasure of sharing.

We are in the process of moving bedrooms around, and have been considering putting Alex in a big boy bed. When he wakes up at night (which he does at least once every night) he goes back to sleep on his own and happily cause where else is he going to go? When he is moved to a bed, he will have freedom to get out of bed, he wont have the freedom to tell me those random little thoughts kids tell you when they get out of bed at night. Is he scared, thirsty, just wants a hug? When I put him back in bed, and he cries, what does he want to tell me? There is a high number of kids who are intellectually different, and who happen to have RTS who have some trouble staying in their beds.

Considering all of this, I am at a loss of when to do the move...........

Thankfully, communication is on the move, and it will only get better.