Saturday, October 30, 2010

Monsters in my house.......

Say Wuh?! He has big googly eyes......


Real big



Dots on his tummy.......




and horns on his head!!!!!






Oh, I know those blue eyes.....Its just my monsters Max.



Load him up in the car with the others......



Trick or treating we go!

















HAPPY HALLOWEEN!

















Tuesday, October 26, 2010

Hands on a miracle

Don't turn down the music!!!
I know, I know, I do it too, but this time let the song play. Its just so true. Ive got my hands on a miracle, believe it or not.......
He was on his way out. He couldn't eat or drink by mouth......
G-tube placed at 4 months.......


Couldn't even eat a piece of birthday cake.......



Starting to taste........




And look at this...... In school, feeding himself!!!!!! See him Cheri (his very first SLP and world renowned)!!!



A big boy on the play ground..........


Very much into his work.........



So proud of himself!


The world is too Alex!
I got my, hands on a miracle!!!!!!!!!!




















Wednesday, October 20, 2010

My Max

Max is lucky. You would think being number 4 would put one at a disadvantage for one on one time with mom. We have the entire morning together. We play outside, go to the store, to the bank, we go on walks, read books, look at pictures, and eat a banana snack together.


Max must keep moving, hates to sit in car seats, shopping carts, and sometimes even the stroller for more than 10 minutes. He is an explorer. Is obsessed with cars, and the big yellow bus at Alex's school. He doesn't enjoy cutting teeth, and lets everyone around him know this. He loves fruit, oatmeal, and spaghetti.
His happiest time is in the evening when his older brothers give him attention.
He always wants to be outside.
Its going to be a long winter with my Max.


Monday, October 18, 2010

On his own.....


Alex gets woken up at 6:50, I give him his water and meds, and this gives us 30 minutes until breakfast, the time Alex needs to digest his meds and water so he wont throw up breakfast. He eats sharply at 7:20, over right at 7:30 so at 8:20 he can get another round of water before school. Everything is timed perfectly so the school has nothing to do with his button/feeding tube. That's the way I want it. This way he can do nothing but learn, and eat, and drink on his own. He is becoming more and more independent. Here is some art work that he has done on his own, or just a little help.













Alex loves school, and I know they love Alex.





Tuesday, October 12, 2010

Feeding update


We are SUPER busy these days with three boys in school. However, I couldn't be more happy with the progress Alex is making. He is using PECS at school, and choosing m&ms to eat (of course), he is using a special crooked spoon at school, and feeding himself! He is getting better at textures (no more pureed banana for him). He is feeding himself raisins, cereal and all sorts of things that he throws on the floor here at home. Drinking is still our biggest challenge, he has 0 desire to drink. But this is a food update, and I can finally see a light at the end of the tunnel:) From NPO to using a spoon!



p.s. I promise to update my blog more, I think.......