Monday, August 30, 2010

What's new with my boy Alex?

He can put his own glasses on by himself, and he is keeping them on most of the time!
He is now handing objects to you when asked to.
He has been practicing with his daddy's iPhone touch screen in preparation for his very own ipad to communicate with.
He has been playing on our play gym in the backyard in preparation for school.....Yes, 8 more days and my little buddy goes to school!

Can you believe its almost been 3 years?

Thursday, August 26, 2010


The farm.....Its where I grew up. Alex enjoys his car ride to the farm.....
Max? no, he does not.

Its a longer drive than heading to the store, but only about 25 minutes longer.

Its a pretty drive!

There is Pops! or dad, as I call him.

Alex cuddles his Nan.

Max wrestles his pops.

The big boys like to wade in the creek, or crick depending on where you are from.

We always enjoy our visits to the farm.

Sunday, August 22, 2010

Inside those four walls

We used to go to church on a regular basis. Sunday morning, Sunday night, and Wednesday night. We were involved, and felt like we had extended family.
After Alex was born his care was so involved, and he could not be around other snotty nosed children that we were no longer were able to go. Adam and I have not been to church in 3 years at the end of this month. To be honest, it feels normal not to go.
Of course 3 and a half years ago, I never would have thought that feeling normal at home on a Sunday morning would ever feel normal.
Churches have programs for the deaf, the blind, for teens, college students and even children across many oceans.
Why is it that those who are intellectually different, and their families aren't given the same opportunity to go to church? Of course they are welcome, but with some of the medical issues be it a feeding tube, oxygen, or just being medically fragile makes going to church impossible, because there is no program in place to make going easy.

The majority of families with intellectually different kids, and medically fragile children just don't go to church because there is no program in place to make the transition easy.
What do you do?
And the real question is, what does the church do to get your entire family inside those 4 walls?


Thursday, August 19, 2010

Jennifer Aniston uses the R-word

Too proud to be offended.

I am not sure when it happened.

The stares used to bother me. The looks of pity. The children whispering about Alex when he "sings", and hoots his cares away.
When he was born and dying I actually thought to myself how soon can we fix those thumbs. I guess it was a visible sign that things weren't perfectly typical. Im not proud of that, but its the truth.
I see now, and I see this because I have the honor of having Alex, that perfectly typical was a myth to begin with.
Yes, I still am able to recognize the looks of pitty, and the whispers, but I am no longer burned. Maybe it was my problem to begin with?

Maybe it was around the time I wrote this, or maybe it just happened when I was surrounded by my RTS family. Really, I'm not sure when it happened, but I'm too proud of who Alex is to be offended by anyone else and their ignorance, or curiosity.

Alex is perfectly Alex, just like we are all perfectly who we are. I love each crooked thumb, I love his sense of humor, I adore his happy easy going ways. I see that he knows so much more than the tests say he does, sneaky bugger, and I love it!
I am so proud of you Alexander Pruitt!

Its nice in this place...........join me?

Tuesday, August 17, 2010

The End

School starts this week. It is the end of a very busy beach going, water slide sliding, roller coaster riding, mountain filled relaxing, hanging out with friends kind of summer...... Such a good time. We have also been spending our time doing some of this....

and that.....

Big things are coming....change is coming.....but for summer? It is the end.

Monday, August 16, 2010

cake much?

after eating this chocolate cake for Noahs birthday.......

We had some of this lego cake for Noah's birthday that his grandma Pruitt made.

Then we went over to Will's house for his birthday party, and had even more cake!

William is turning 4, and it just so happens that he has the same syndrome as Alex, but that of course is beside the point.....The point is that we got to spend a whole lot of time at his house!

Alex got to lick new windows for a little sensory fill!

Myssie got a little baby fill.......

We all got a little Dominic fill...... (He too happens to have the same syndrome as Alex,but again this is beside the point)

Some got a little Alex fill.....

And prince William and his loyal friends Alex and Dominick got to hang out!

In just a few weeks we will be eating more cake........somebody is turning 3, and 1 soon!

Saturday, August 14, 2010

Put one foot in front of the other.....

and soon you'll be walking out the door!!!!!
Alex walked over 50 feet in therapy the other day. He can walk! He just never chooses to walk. He will walk to the chair if you prompt him to. He will walk anywhere if you prompt him to. He never chooses to walk on his own.....But there is no denying....He has got the skills!

Friday, August 13, 2010

11 months of MAX!

Watch out if he is hungry, poopy, or sleepy! He gets mad fast, but its always easy to fix! If hes clean, fed, and rested, this boy is a LOT of fun. Loves a good laugh, and holds his puppy and sucks his thumb to sleep. Max amazes me with his ability to pick up on things, and is signing more, eat, and all done. What else is this boy working on? WALKING!!!!! He loves him some applause too! Go ahead, clap your hands for this cutie on his 11 month birthday! I know you cant resist that smile......

Happy 11 months Max!

9 years old!

9 years ago today we drove to the hospital early in the morning and enjoyed a meteor shower on the way, not many hours later you came into this world. I knew you were something special from the beginning. You seemed to take it all in even as a newborn, concentrating on every detail.
Today, you still don't miss a beat!
Independent as always, loving to learn, and aiming to please.
I love watching you grow up, and hope you use your gifts wisely! As you always do, continue to aim high Noah! We love you!