Friday, February 27, 2009

Excuse me, whats the problem????

Hey everybody, bird here.


I unhooked from my water, and pump the other night, clamped my tube, and climbed out of the crib. I was looking through some of mommas posts for the week, my favorite was yesterdays with the white horse. I sure love that white horse, I also love to put teeth marks in the entertainment center. Momma doesn't seem to care because she is so proud of me pulling up to it.

So anyway, I was looking through mommas posts, and I saw her post about there being a problem. Problem? Momma? Really? Whats the problem? Does anyone see a problem??? Click here if you forgot what Momma thinks the problem is.... So that very next morning, yes the very next morning, Tuesday I think it was, I showed her the problem, which is I will soon be into everything!!!!!!!!!!!!! Watch for yourself.............Aint no thing now....





Give the bird some props now........This is somthin to celebrate! It took momma a few times before she actually believed it was happening, I mean she just shared with the world, that there was a problem.

Sometimes she does this thing, where I will do something awesome, and she will be like "He has (The Rubinsteins)" thats what she calls it sometimes, when she feels silly. Anyway, shell say "he has the Rubinsteins, he isn't really doing that right? He wont do that for another few months right?" I'm tellin you momma you got to start given me the benefit of the doubt. I got skills girl!!!

p.s did you know that its actually called creeping, crawling is when you drag your tummy across the floor, and pull forward on your arms, creeping is for the big dogs, no tummy's draggin around here. Go on ask you therapist if you don't believe me, I am well trained in therapeutic terms.

Go on now give the bird some props.......

Thursday, February 26, 2009

eating, weight gain, and a white horse.

Alex has been losing weight since September (5 lbs total), at first no one was worried because he was such a chubby little thing, click here to see how chubby he was........ As he kept losing the nutritionist got worried. Anyway, yesterday nutrition came by for his weigh in and measurements, and he gained 10 ounces! Its because he is eating so much from spoon feeding, if he gains a lot more in a week, we get to cut back on his peptamin, and increase the table (pureed food). This is what it is all about, this is the first step in losing the button, and the tubes. Now we are far from that day, he drinks no volume by mouth, but we are headed in that direction. We have gone from eating just one ounce of pureed table food a day 2 months ago, to 5 sometimes 6 ounces. If you didn't know one ounce of pureed food is the size of a regular ice cube. This is great news! I honestly thought for a while we might be one of the few (RTS) kids who always has the button. He continues to grow in length, this has never been an issue for him, he is almost 32 inches tall, and his weight is now 24lbs, almost 25. In August he was 29 pounds so he lost 5 lbs, but is now back on the increase, hopefully just not as fast.



Tuesday, February 24, 2009

The problem is....

His right leg.......
He gets into perfect crawling position, then out comes the leg. It almost seems like he knows he is going to be sitting up, so he gets the leg out there and ready, just saving time maybe???? The boy would be crawling if he would just keep that right leg in. Here he is below in perfect position. Out comes the leg, I know he is thinking I'm so close to Elmo, I will be sitting soon might as well stick it out now.

and the sit.

here we go again.....









Now that's one limber boy!!!!





and again......





















One armed push ups?????



always a show off!








Monday, February 23, 2009

Another busy Monday


Today we are off to see Cheri for Speech, and then we go see our pediatrician for a check up.

The Miralax seems to be doing the trick, and it seems to be around the same time each day too. Its nice to not stress about him going, and just trust the medicine.

That's about it, busy day...Better get going!

Friday, February 20, 2009

A week with Bird

red=Alex, green =Noah, and Blue=Joel

Since I missed you all last week due to some necessary fussiness, which I'm still including to my sleep routine at night, I thought I would let you know what an entire week with me is like. Everyday you can know what I'm up too, since every week is the same. Isn't that a great idea?
On Monday morning like every morning I get woken up with music playing in my cd player, if momma didn't wake me up, I would sleep till 9:30 or 10 in the morning, and since she has to take big Joel to school she needs me awake around 8:20. then I get carried to my duck, where I wake up, and keep a smile on my face. If I don't get a bath I can be very touchy after being woken up, momma likes that my button site on my tummy gets cleaned without having to rub and scrub, its always pretty crusty in the mornings, and I don't like anyone rubbing it. After my morning bath I get dressed and we take big Joel to school. Then we come home for medicine, juice, and play time, and hour after juice my feed starts, I'm really hungry by then. I only have therapy every other Monday in Springfield with Cheri so unless I'm there, I dont get out of the house until we go pick up big Noah from school, and again I am woken up from sleep.
Tuesdays no therapy, Joel doesn't have school so I stay home until we get big Noah. Joel does have swimming lessons, but daddy comes home for lunch so I stay with him.
Wednesdays are the same as Mondays, until 4, then I have physical therapy, my therapist keeps saying perfect, when I do something, I smile, because I knew I did good, and while no one is perfect I'm pretty close.
Thursdays are just like Tuesdays until 4:00 that's when I have occupational therapy, and then Fridays are just like Monday and Wednesdays, but I have developmental therapy at 4:00. Noah has baseball on Thursday, and momma plays volleyball Monday nights.
Im sure there was a better way to explain the week, but Im really focused on typing, with my angulated thumbs some of these letters are hard to press, good thing there is spell check!

Here are just a few pictures of me during my week........ Morning bath time! My favorite!

Practicing sitting and standing with my developmental therapist.







Peace out!



Thursday, February 19, 2009

Oh poop!

That's right this post is about poop. Alex has been blessed with being able to poop for 16 months, no medicines, only on occasional suppository. However, now that the little bird is eating so much things have changed in the poop department, and yes there is a poop department. the past few weeks have been the first of the suppository's, then yesterday I gave him milk of mag, still no results, so I finally went and got miralx. I think I will give him a day of rest, and if there is still no poop, Friday morning he will get his very first dose of the pooping medicine. It was bound to happen, practically every child with RTS I know is on it, its part of the RTS deal really, we have just been able to dodge it until the good eating came. I wouldn't trade the good eating for the easy pooping, but it was nice while it lasted.
Miralx, I surrender.

I thought about posting a picture of cow poop or some other google image to go with this post, but it seemed inappropriate............

p.s If your child poops with ease everyday, enjoy it!!!!!

Wednesday, February 18, 2009

WordFULL Wednesday

The boy must be up!
I couldn't just do a wordless Wednesday post when my bird is pulling up to anything and everything, I'm too proud of him to leave out the words. At nap time and bed time, I go in and lay him back down multiple times, because he needs help. On occasion he gets down by himself, but he usually calls for me with a cry, and smiles when I walk through the door. I'm in love. He has been pulling up in his crib for a while, but yesterday he pulled up to a shelf in the living room, he even knocked over my pretty wooden vase, but that's ok with me, just keep making the milestones boy! I'm so excited with his progress........Let him know you are too!









Tuesday, February 17, 2009

Making a mess!!!!



I am ready and excited for Alex to pull all the toilet paper off the roll, pull the pots and pans out of the cabinets, and pull all the books off the book shelf, but for now I will settle for the mess he makes in his little area that I place him in. He managed to pull out every last toy in his basket of toys, and he does move around in the area I place him in about the width of a three to four foot circle.
Speaking of which this brings a question to my mind for you RTS moms. When my other boys started crawling they went from rocking to crawling all around the house in a matter of days maybe a few weeks. Alex goes forward on his hands and knees (well one leg is usually stretched out to the side), when you other moms say my child started crawling at 10 months, 15 months, 18 months, 2 years did you mean they were crawling all around the house, or taking a few "steps" in the little circle you placed them in? I don't think its time for the he is crawling post, but he certainly is mobile to a certain degree. So what did you mean when you say your child started crawling at this age? Were they crawling all around the house or just in a little area? That was a lot of rambling for one question.
Now for your questions, I have received a few emails asking about the recurrence of RTS for us. Thank you for your question. The chance of us having another child with RTS is the same as you having a child with RTS, it happens spontaneously, and most literature will tell you it happens 1 in every 100,000 births. So I suppose I would have to have 100,000 more babies:) RTS is not inherited, no one is a carrier, unless they themselves have RTS like Alex. So I'm not concerned with having another child with RTS, just the other million things that could go wrong.


Even though he has nap bed head, doesnt he look handsome with his new haircut.

Friday, February 13, 2009

Up all night

Bird forgot it was Thursday night and he needed to get his Friday bloggin with bird post together, instead he decided to cry most of the night. All I could think was in 30 weeks there could be two of them crying........

So between trying to keep the house clean to sell, and the kids, and just being sooo tired, I haven't had much blogging inspiration. I'm gonna take the weekend off, but i promise to be back with bells on Monday morning.

Have a good weekend!

Tuesday, February 10, 2009

I can't believe it!!!!

Our nutritionist had told us last visit that instead of giving Alex juice in his cup we should be giving him what he needs to drink, being the peptamin jr. That makes sense, if our goal is for him to drink on his own he needs to drink what makes him grow, not empty calories in juice. So I had a few cans of vanilla peptamin jr, so I gave him some in his sippy cup, and for the first time he was interested in it. I didn't go crazy with it because I wasn't sure if it was thick enough for him to safely swallow, so I waited to see Cheri. So we get to Cheri, and he downs his taco meat in under 15 minutes, then we bring out the sippy cup! He wanted it! He loved it! Cheri says it is about nectar consistency so we don't have to add simply thick to it. Then Cheri got out her nosey cup, a little cup that has a dip in one side do you can see Alex's mouth, and be in control of what he is getting. Cheri thinks that Alex drank from his mouth mind you about 10cc's, almost half an ounce. Alex hasn't had this much since he took the bottle at 2 months old! We are taking giant steps in the eating drinking department! I am thrilled. I was so concerned that I wasn't doing enough, other kids with RTS are getting e-stim, and it just isn't available in our area, I thought how in the world are we going to move forward, he isn't interested, he has reflux, it was a vicious circle that only time could take us out of. Cheri assured me that Alex didn't need e-stim, and I let go of the idea of it.
We are here, he gets it, he is interested, he wants it. We are on our way! Sippy cup


The nosey cup








Swallowing!!!


Show off!!!




Monday, February 9, 2009

Monday, Monday...Ba Daa Ba Da Da Daaa....

Sing it with me now......
I do not like Monday just because it means 4 more days until the weekend. It means no sleeping in, it means back to the routine.


Today though we get to go see Cheri, Alex's speech therapist from the beginning, the one that fell in love with him the minute she held him in her arms, right out of the hospital from aspiration pneumonia, full head of hair, little grey squirrels on his pj's, and unable to swallow safely or control his own secretions. So this Monday is different, we haven't seen Cheri since before Christmas, just because our schedules haven't fit together well.


Alex is pulling to stand in his crib, he tries to do it on toys, but gets very scared, and just screams, he must feel confidant in the safety of his railings. He has been very grumpy lately, I think he is teething, or I just don't know what else to think, but really I think I feel a tooth way back there, the boy doesn't have much room for anymore teeth, this has to be the last of it.


So that's it, we are headed your way Cheri, I think I'm going to bring my camera, and get some therapy shots, I don't do that enough. Alex is going to be showing off some skills, and hes not humble about it either!!!


Now check out this cuteness....................











Friday, February 6, 2009

Birds back!



Bird here again. Its Friday, well actually its Thursday night, its my night to blog. Momma is so tired, too tired to blog, too tired to fold clothes, too tired to do anything. Momma makes herself get up and do, but at the end of the day she is toast. Speaking of food, I am doing so good eating, I don't mean to brag, but hey, a year ago i wasn't eating anything, give me some props now. go on props. You see me up there that's a gerber yogurt melt in my mouth, I know I don't look happy about it, it was the first time something so big was in my mouth, I was just a little unsure, but I chewed it, rolled it around in my mouth, didn't gag, and swallowed. I'm pretty amazing really. Now mom and I have them everyday so I can practice having more than pureed food in my mouth. Momma has been adding lots of frozen food cubes for me, every time she cooks she makes me some too! This week I had homemade sloppy joes, and I loved it! Momma thought I didn't see her sneak the broccoli into my meat, but I did, I didn't mind, I don't know why she thinks she has to be sneaky.
This morning at 11:30 central time we are showing our house to the people that were supossed to come on wednesday. Wouldnt it be so cool if the first peole that looked at our house were the ones that bought it! I know slim chance, but lets do some hoping this morning.

Thursday, February 5, 2009

So far, so good.

First I must say all of your comments helped so much today, i was able to check them from my phone in the waiting room, and it was like you were all there with me, and yes http://debbie61497.blogspot.com/ your comment made me laugh, even a chuckle out loud........ After the butterfly's in the waiting room, choking back tears as I walked toward the ultrasound room, and telling the technician to Love me through the experience, all went well. The baby measures at 9 weeks, and we have a due date of September 9. Alex's birthday is September 7. The doctor says i am a fine candidate for a v-bac, so that is the plan right now. May 5 is the 20 week ultrasound. The high risk doctor who did all the 3d ultrasounds of Alex wants to do my 20 week, just because of all we went though not because I am high risk. I'm glad about this, because he can talk to me about what he is measuring and scanning. Again, hes gonna have to love me through all the questions, fears, and tears, I'm sure.
The yoke sack looked perfect, the heart rate was 186, which for a second scared me, you know 6 weeks in the NICU, and watching a heart beat at 200 times a minute with pulmonary hypertension, those numbers are scary, but then I remembered little rice puff babies with nubbys for arms and legs are supposed to be up that high right now. Ok, heart rate for a 9 week old, bad in the NICU, and everything else looked good as well. One appointment down.

After I got home, our realtor called and said our showing was cancelled and they wanted to come Friday morning instead. So no house showing today. I hate trying to sell a house.



Here you go, here's the surprise.........




Wednesday, February 4, 2009

Big day





Today is a big day in our house. Ultrasound at 9:45, 100,000 questions for the doctor at 10:00, and we are showing our house at 4:30. Can we say stress?

We have our sites on a house, it meets all our needs as a family, but we have to sell our house first. AAAAHHHHHH!!!!!! I cant stand it.

So today is the day I see Pruitt baby #4, today is the day I walk back into that ultrasound room for the first time since Alex was in my tummy and the high risk team told me everything was fine. Today is the day.

While you wait for news from the day you can enjoy the pictures of Noah doing a little PT with his baby boy. Noah can motivate Alex to creep/crawl more than anyone else. Its not official Alex isn't crawling, when he does there will be video, and confetti, but he is certainly creeping around, and trying really hard, and when big brother is in his sites he is on his way!

Be patient baby 4 pictures to come.

Tuesday, February 3, 2009

A little too familiar

This pregnancy seems so eerily familiar. I was this far along with Alex, it was cold, I was sick. I had my first doctor appointment in February. Then, I was blissfully unaware of what was to lie ahead. Now I know so much, I know that doctor appointments, and ultrasounds aren't perfect predictors. I want to relax, and enjoy, I know I need to, I know, I know.

All I can think about when things slow down is that lullaby music the hospital plays every time a baby is born. Will I get to have my baby in my arms this time, each time the music plays. Will it haunt me? Will it make me smile?

Will I have to wipe my neck with a transport towel so the baby can smell me, when I'm not there? I'm torturing myself, but I just know too much.

Tomorrow I go to the doctor, I will have an ultrasound at 9:45, I will hear and see the beating heart. I want to enjoy it. This is just all too familiar.

So I try to focus on my days, on my boys, its not hard...........


Monday, February 2, 2009

Serious Life Magazine

I wanted you to know about this publication I’m a part of called Serious.Life Magazine. They just published the February issue today, and I am in their Featured Blog Directory. It’s a very high quality magazine… you’ll really like it.

The magazine includes a lot of great content from bloggers you’ll appreciate, as well as great features, photos and other content. The magazine is owned and published by a family who have seven kids, three adopted and one who has Leukemia (http://www.riggsfamilyblog.com/). The magazine gives away a bunch of ads to charities and ministries. Besides great articles on interesting people, there is a lot about family, adoption, personal finance, spiritual life, humor… all sorts of “life” topics.

Again, the subscription is free, and I know you’ll enjoy the magazine, so take a minute to check it out and sign up to get future issues. http://www.seriouslifemagazine.com/ We are on page 121.

2 oz


That's how much food Alex ate yesterday for his first meal. I sent a text to his nutritionist and she said if he keeps it up, we might be lowering his peptamin jr volume. Now that's moving forward!