I remember very clearly the doctor telling me all that I should expect with RTS, and the worst of it, the one all of us parents with an RTS child fears probably the most is speech. I didn't get it, I ignored what the doctor said, and thought to myself of course he will talk, he will even talk on time.
Two years down the road we have no words, we have no signs.
Tuesday night Alex hurt his foot, at first I thought he had just scared himself because he fell, and that is why he was so upset, but instead he had hurt himself, but was unable to tell me. I only figured it out when he was still grumpy after nap, then I had to investigate. Finally figuring out that his foot hurt. He was so upset and crying because he hurt, the only way he knew to tell me was to cry.
I'm not the same girl in denial I was in the NICU, but I'm still very hopeful for communication, and very discouraged that we have none.
I'm pretty good at anticipating his wants, and needs.
I cant help to wonder what he is thinking, he knows we all talk to each other, he understands what we are saying, does he wonder why he can say things, does it make him sad. How scary it must be, how unbelievable frustrating. Is Max going to have his first word before Alex? What if something hurts, what if he is feeling sad about something, but all he can do is cry? My voice can only go so far for him.
I have to help him find his own voice.