A question I was asked yesterday by Alex's nutritionist.
Whom I love , just so you know.
The question got me thinking though, and so here I sit, venting, letting it all out to you.
I was excited for his eating speech therapist, and the nutritionist to see how well he was eating his textures.
I opened the door, welcomed them in, and with her knowledge filled eyes she asked about the bumps on his arms. I had noticed, but I have bumps on my arms, so does Noah, in fact 1 in two people have them, its hereditary, so it made sense to me that more than one of my children would also have bumpy arms. She also noticed that he had a snotty nose, I answered yes its been a few days. Has he been getting lots of milk products I was asked, actually yes, since adding the textures the milk has increased. He probably is allergic, lets cut out all dairy, and see if his bumps and snotty nose go away. Again, I want you to know I love our nutritionist, she has really, really helped us along the way!!!!
Then comes the weigh in, the height, and the head measuring. Alex lost 9oz!!!
Since adding the texture, he has been down quite a bit with the puree food, usually taking 2oz of pureed food per meal, now only one, along with texture. So she says we are also going to increase his volume per feeding, not much just 10cc per feeding totaling an ounce a day. Does that work for you?
This is what she asked me. Does that work for you.
Well no, I thought, none of this does, the tube feeding, the weigh in's, the therapy, the doctor appointments, the surgeries, this doesn't work for me. I didn't know I had a choice, if I say this doesn't work for me, do I get a easier option????? No milk allergy? No tube feedings? Maybe they could have asked me that in the NICU, or right after he was born. Does this work for you? No, thanks, could I have another scenario please.
So my answer was no, this doesn't work for me, but it has to, he cant lose weight, he needs to grow, he shouldn't have dairy if he is allergic, but no, this doesn't work for me. But I have to make it work, like I have since the day he was born. Things get relaxed, feel good, become routine, and then BOOM a change, I hate it, it makes me want to cry, sometimes it makes me want to quit, it doesn't work for me, but like I said in this post, I have to go on, that's what we moms do, it doesn't work for us, but we still have to twist it, and turn it, and make it our new normal, and get used to, and prepare for the next change. Not because we are so strong, or amazing, or better at it than the next mom, we HAVE TO.
But to answer the question, no this doesn't work for me at all.