So for a few months now we have been comfortable feeding him his pureed food, and he has been comfortable with it. Every once and a while I would stick an easy solid in, but I have never been constant. Its time to push! I don't want Alex on purees forever, and I certainly don't want him on his feeding tube forever, so its time to push. At every meal I am going to feed him some sort of solid, along with his pureed food. Banana, potato, cooked carrots, nutri-grain bar. You get the idea. I am also going to offer him his cup.
This started yesterday, and the first feed he did very well with the banana bites, but was very aversive to his cup, then the next two feeds he was fine with it all. This morning he also took his cup well, and handled the chunks. So long story short, I have to be consistent, and he will move forward. It will be a long road, we aren't anywhere close to taking out his button, and throwing away the tubes, but we are on the right road, as long as we don't get comfortable. Here is his pureed food, banana chunks, and some soft cookie. Also his blue cup that he drinks very well from.
Another department we are lacking in, even with his 5 therapies a week (ahem) is his sensory issues. So I am taking it upon myself to work on this with him. He doesn't love his hands to be dirty, but he tolerates it for a while, and he loves to squish his fingers together when they are covered in whip cream. The boy will not put his hands in his mouth, even covered in a sugary mess. He has to be clean, and away from food before his hands go into his mouth. Thank God he takes the spoon! So once a day we will be working on being messy.