Our nutritionist had told us last visit that instead of giving Alex juice in his cup we should be giving him what he needs to drink, being the peptamin jr. That makes sense, if our goal is for him to drink on his own he needs to drink what makes him grow, not empty calories in juice. So I had a few cans of vanilla peptamin jr, so I gave him some in his sippy cup, and for the first time he was interested in it. I didn't go crazy with it because I wasn't sure if it was thick enough for him to safely swallow, so I waited to see Cheri. So we get to Cheri, and he downs his taco meat in under 15 minutes, then we bring out the sippy cup! He wanted it! He loved it! Cheri says it is about nectar consistency so we don't have to add simply thick to it. Then Cheri got out her nosey cup, a little cup that has a dip in one side do you can see Alex's mouth, and be in control of what he is getting. Cheri thinks that Alex drank from his mouth mind you about 10cc's, almost half an ounce. Alex hasn't had this much since he took the bottle at 2 months old! We are taking giant steps in the eating drinking department! I am thrilled. I was so concerned that I wasn't doing enough, other kids with RTS are getting e-stim, and it just isn't available in our area, I thought how in the world are we going to move forward, he isn't interested, he has reflux, it was a vicious circle that only time could take us out of. Cheri assured me that Alex didn't need e-stim, and I let go of the idea of it.
We are here, he gets it, he is interested, he wants it. We are on our way! Sippy cup