A year ago I wished, even got a little hopeful that one day there would be a cure for RTS.
Some fabulous person would find a way to replace that protein, find a prosthetic piece for the missing part of that chromosome.
Of course I knew this was nearly impossible, I still hoped. A year later, if you ask me do I want to cure Alex of RTS, I'm confidant I would say no.
Now, don't get me wrong, I would love for the feeding tube to be gone, I would love for him to crawl, walk, say "up momma". I would love to not schedule at least 3 more surgeries for him, stop taking him to therapy, stop yelling "come in" for his in home therapists. The "side effects" of RTS are hard. I don't like them.
Our special "birds" talk with their hands, or a device talks for them, our birds talk with their eyes, and smile. Even in their silence they say more than the most educated man covered in awards, and diplomas. In their silence they are teaching the world. All the world has to do is see it.
So now I just take it day by day, loving him with his button and tubes, loving him in his silence, loving him and his stationary little self.
Alex isn't RTS, he is Alexander Jon Pruitt, with a head full of hair, gorgeous blue eyes, and a love for books. Would I change who he is? Would I take away that smile that melts my heart, would I change the boy who teaches me un conditional love, patience, endurance, and hope.
Teaches me to be content where we are, teaches me to see the world differently, teaches me not to take the small things for granted, the lessons he has, and will continue to teach this awe struck world.
NEVER! Alex doesn't need a cure, we all need to be a little more like Alex.