Alex has been losing weight, he was once 27 pounds and is now 25. He has lost two pounds since June. The GI and pediatrician aren't too concerned, they thought he was getting too heavy in the first place. His nutritionist does not like weight loss in children no matter what. Alex poops every three days or so, he is not constipated, we think because he is losing weight he is barely getting enough nutrition there for, not needing to poop as much.
So my once thriving boy is slipping. Do we feed him more, chance reflux, and losing it all. Do I once again become a personal syringe holder, and spend my time putting food down him.
As of now we will continue to do what we are doing, if he loses again then our nutritionist will call the doctors and tell them she isn't happy, and we will see what they say. Funny, I am his mom, I can do whatever I want, but suddenly I don't know best. I don't make a move without someone telling me what to do and how to do it.
Alex's 3 teeth have broken through, but he is still congested which leads to coughing at night, leading to vomiting, leading to being awake most of the night......One month and counting.
I had a dream last night I was in a old clunky car, someone else was driving, and we had a long trip in front of us. We never could make it to our destination, we were moving, but the destination never got any closer.
This is what it is like to be the mommy to a special child. You have a long road ahead, but there is no end, it will always be a long road ahead. I don't think the car has to be old and clunky though.