No sleep? Then no syndromes!
Its one thing to tube feed, give a slew of medications, order supplies, clean up vomit, breathing treatments, therapy, doctor appointments, and just plain worry about your special needs child when you are getting sleep, but take away the sleep, then please take away the special needs.
Alex has not slept through the night since September 31. First it was a cold, now he is getting in three teeth, all the while fighting another cold.
Sorry, no sleep, not much bloggin either:(