In 2007 our third son was born, we were expecting a healthy, normal birth, he immediately went into respiratory distress, and was flown to a NICU in St.Louis, Mo for possible heart lung bypass(ECMO). While in the NICU he was diagnosed with a very rare syndrome (Rubinstein Taybi Syndrome), this is the story of our journey, our new kind of normal.

Sunday, December 23, 2007

My Child

Please ask me about my child, the one that has been through so much. He has special needs, and life right now is rough. I wont be offended with the questions that you have, it hurts more when you keep silent, and pretend he doesnt exist. I need to talk about him, and know that we have been missed.-Jessica Pruitt
(Inspired from the writings of Emily Dent)

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