We are home

We are home. The surgery went well. Alex did just fine with the anesthesia. Both testes were brought down, two hernias were fixed, and his blocked tear duct was probed. The right teste is in place and has a great blood supply. The doctor had to cut one of the two blood supplies to the left teste, but was able to bring it down, and it still has blood supply. He said there is a 25% chance of him losing that one, but one is all you need!
Alex is in a LOT of pain tonight. I wont be posting again until little man gives me more than 2 minutes to go to the bathroom. Lots of cuddling today, lots of codeine too. Sometimes I wonder if its working.
I took some pictures, and will post them as soon as I am able.
We go back to doctor on Thursday to remove the bandages on his circumcision. OUCH! Honestly, it might be the worst part of all.

Pictures coming as soon as I can sit here longer.

Im his mamma

That was me.

I watched for three long hours as they put a picc line in Alex my new born baby, 5 different tries, LOTS of blood, and finally success in his neck.

I watched the doctor tilt his head back, open his mouth, and stick a tube into his airway so he could breath.

I saw countless blood draws for blood gasses.

I watched him cry while intubated, no sound could come out, but tears came out of his eyes.

I watched him struggle to breath, able to count every rib in his side because he was trying so hard to get the air he needed.

I watched him lay there for two weeks before I was able to hold him once.

I watched his BPM (beats per minute) on the monitor reach 200 while he had pulmonary hypertension.

I got used to the alarm going off because his O2 levels were to low.

I learned how to stick a tube into his nose, down his throat, and into his stomach so I could feed him.

I kissed him goodbye for his malrotation of the intestines surgery, and then went and ate lunch with my husband, like it was any other day..........................

I was NICU ROCK, I was already laid out on the ground, knocked down from the diagnosis, and all that I had witnessed.

It has almost been two years.

He isn't Alexander Jon Pruitt (Room 1849) to me.

He is Bird, Albie.

He loves to snuggle,

he loves to read books,

he loves to laugh,

he loves to lay on his pillow,

he loves pressing buttons,

he loves his music cube,

he loves peek a boo, and patty cake.

He loves the wind in his face.

He LOVES his mamma.

His brothers can always make him laugh.

He loves his bath,

he loves to explore,

he loves to sit on his bottom, and go around in a circle on the kitchen floor,

He loves chocolate chip muffins.

He loves cell phones.

I really don't want to do this.

Im NOT the the ROCK that I was.

Im his mamma.

Just passing the time.

Trying not to think about what is to come. Friday the boys, and I, yes, I went on a bike ride to the park. Alex loved his bike ride this time, much more than he did on mothers day. He giggled on the swings, and loved being with his brothers.

Today Adam took the boys on a bike ride. We are just passing the time, trying not to think about Monday.

I will be twittering as soon as we are up, and on our way Monday morning at 5:00am. Surgery begins at 7:15 central time. Hopefully Monday night we will be home, and I can give a quick update on our status here on the blog. If not I know Myssie will give an update for me.

I dont want to....................

I don't have any cute pictures, or anything deep to write about.

All I can think of is surgery on Monday. We are the first surgery of the day, so we have to be there at 6:00am. Hopefully this will give us enough time to recover, and we really will get to go home same day as they are saying. Follow us on Twitter for the latest updates.

Alex is having his testes brought down, his right eye probed (blocked tear duct), and is being circumcised. The doctor is pretty sure he can feel one of the testes, but cant feel the other, and cant even see it on ultrasound. I'm worried this may mean actually cutting him open to find and bring it down. Which may mean staying in the hospital. He is being circumcised just for cleanliness issues, since he did have kidney reflux, and was at a higher risk for UTI, and other infections it seems like the best thing to do for his health. His right eye's tear duct is completely blocked, and I'm hoping the probe will take, and he wont wake up goopy, and red every single morning!

RTS kiddos have been known to have trouble under anesthesia, Alex hasnt had trouble in the past, so Im hoping we wont have trouble now.

I don't want this to set him back.

I don't want to leave him.

I don't want to think of him being cut on.

I don't want him to go under anesthesia.

I don't want to wait 4 hours.

I don't want to hurt for him while he recovers.

I don't want to worry.

I don't want to wonder.

I don't want to do this!!!!

Steps in the right direction!

Alex has started to roll the ball back to us! Before he would hang onto it, mouth it, and hug it. Now he knows how fun it is to roll it back and forth! A step in the right direction!

Yesterday morning while his speech therapist, and nutritionist were here. He had grown so well, gaining a few ounces, and has hit the 32 inch mark in height!! I told them how well he has been eating by mouth, new textures, and the amount has increased greatly. I have been instructed to keep a 2 day log of the food he eats, and the next time we meet, if he has grown well, and is still eating well, we are going to cut back on his tube feedings!!!!!! THIS IS A STEP IN THE RIGHT DIRECTION!!!! I don't know how much, maybe 10cc, maybe and ounce at a time. I don't care, this is the first step we are making in letting go of the tube! Don't be fooled, we have a long way to go, but its a step, and a step worth celebrating!!!!!

p.s

Still havent opened the envelope, I just dont think I will. Only 8 more weeks!