Friday, September 22, 2017

4th grade


If you ever find yourself wondering if you can do it, remember how far you have come. Everything you have overcome, every mountain you have climbed. I am so proud of you Alex the Great. I love you.

Thursday, September 7, 2017

10

10 years, 3,650 days, 7 surgeries, 1 life flight, a million smiles=priceless. 
                                             Happy birthday Alex the great!!!!

Tuesday, August 29, 2017

American Diabetes Association and JDRF Partnering to Provide Emergency Support for People with Diabetes Impacted by Hurricane Harvey: American Diabetes Association®

      As the mother of a type one diabetic I can understand the fear and worry that comes with maintaining a stable blood glucose number. It is a daily, hourly lifetime commitment. I can not imagine what that is like when a natural disaster hits. Suddenly the 24 hour pharmacy is closed. The power is out, and your insulin supply is going to go bad. Are there enough carbohydrates in the house? Is it too hot? There are so many factors that determine a good blood glucose, and a good blood glucose level means life!
     To be stranded as a diabetic is an immediate life threat! If you aren't in or near houston here is how you can help. #harvey #help #T1D #hurricaneharvey #donate #typeonediabetes #houston

American Diabetes Association and JDRF Partnering to Provide Emergency Support for People with Diabetes Impacted by Hurricane Harvey: American Diabetes Association®

Wednesday, August 23, 2017

Eyeballs, acceptance, and fighting back.

     My type one had his annual eye appointment, and this year he was very aware and curious as to why. Noticing a poster on the wall of different eye diseases he quickly read the words diabetic retinopathy. Knowing his diagnosis of diabetes he asked what it meant, how one gets it, and if he had it. Being a nurse his questions were easy to answer. Being a mom my heart ached inside as I sensed his fear of the unknown and his realization of the possibilities. Since diagnosis, he has accepted the multiple daily finger pokes, and the multiple daily injections, but this was the first time he asked about his future, and what type one diabetes can and is doing to his body.  I have to teach him the reality of his diagnosis. I want to protect him, I don't want him to worry, but this is our reality, and someday it will just be his reality so now I teach him to fight back.
     Going on 2.5 years since diagnosis and his eyes are healthy. Thankful.
#typeonediabetes #T1D


Friday, August 4, 2017

Dark shadows



"The spirit of her invincible heart guided her through the shadows" -Gabriel Garcia Marquez

When I think about, and am haunted by the shadows in my life this is where I find inspiration, and drive as a nurse.
The darkness that overtook me when I watched doctors 2 feet away tilt Alex's head to open up his tiny airway, and intubate him, his heart racing at over 300 beats per minute.
The day I understood he was behind his peers. The moment I knew this was a life long commitment of full on parenting. I will say that again, life long parenting.
The night Max had a blood sugar of 633 and nothing but reality stared in my face. Forever, until there is a cure my five year old would be fighting a disease. Laying in the hospital room crying as quietly as I could so he would see nothing but brave on his moms face. The dark shadow that surrounds me every night while I fight sleep, and try to will his blood sugars to stay above 60.
The pain of losing people I love...
I take these moments, the pain, the shadows to work. In these shadows I can meet those people in their shadows, and truly say you are not alone. This hurts, it is overwhelming, and it is fucking scary, but you are not alone. As a nurse I see people facing death, Im there when their heart stops beating. The family at a loss. The world is going to keep turning, but here is my hand.
I love being a nurse, and I am invincible from my shadows when I am a nurse. They follow me everywhere, but I am not alone, not as a nurse.

Sunday, July 30, 2017

July 30

You taught my feet to dance upon disappointment, and everything has changed, but I am more me than ever before. Same Marathon.......

Thursday, July 27, 2017